Cystic Fibrosis Foundation

Latest articles

1d
WFMZ Eastern Pennsylvania and Western New Jersey
Lehigh Valley's Finest Campaign kicks offtogether last night.. for the kickoff of a campaign to fight a rare disease. T
WFMZ Eastern Pennsylvania and Western New Jersey / Posted yesterday
together last night.. for the kickoff of a campaign to fight a rare disease. The Northeastern Pennsylvania Chapter of the Cystic Fibrosis Foundation met at Corked Wine Bar in Bethlehem. The Foundation introduced this year's nominees for the... Read more
3d
SaukValley.com
GOP bills would erase protections for sick AmericansSenate bill. The coalition includes the American Heart Association, the Americ
SaukValley.com / Posted 3 days ago
Senate bill. The coalition includes the American Heart Association, the American Lung Association, the March of Dimes, the Cystic Fibrosis Foundation, the AARP and the advocacy arm of the American Cancer Society. The kind of deregulated insurance... Read more
1592 related articles
3d
Baltimore Sun
Obamacare repeal bills could put coverage out of reach for millions of sick Americansbill. The coalition includes the American Heart Association, the American Lung
Baltimore Sun / Posted 3 days ago
bill. The coalition includes the American Heart Association, the American Lung Associtation, the March of Dimes, the Cystic Fibrosis Foundation, the AARP and the advocacy arm of the American Cancer Society. The kind of deregulated insurance... Read more
1592 related articles
3d
Chicago Tribune
Obamacare repeal bills could put coverage out of reach for millions of sick Americansbill. The coalition includes the American Heart Association, the American Lung
Chicago Tribune / Posted 3 days ago
bill. The coalition includes the American Heart Association, the American Lung Associtation, the March of Dimes, the Cystic Fibrosis Foundation, the AARP and the advocacy arm of the American Cancer Society. The kind of deregulated insurance... Read more
1592 related articles
3d
Sun-Sentinel
Obamacare repeal bills could put coverage out of reach for millions of sick Americansbill. The coalition includes the American Heart Association, the American Lung
Sun-Sentinel / Posted 3 days ago
bill. The coalition includes the American Heart Association, the American Lung Associtation, the March of Dimes, the Cystic Fibrosis Foundation, the AARP and the advocacy arm of the American Cancer Society. The kind of deregulated insurance... Read more
1592 related articles
3d
Orlando Sentinel
Obamacare repeal bills could put coverage out of reach for millions of sick Americansbill. The coalition includes the American Heart Association, the American Lung
Orlando Sentinel / Posted 3 days ago
bill. The coalition includes the American Heart Association, the American Lung Associtation, the March of Dimes, the Cystic Fibrosis Foundation, the AARP and the advocacy arm of the American Cancer Society. The kind of deregulated insurance... Read more
1592 related articles
6d
Business Insider
'Unacceptable': Doctors and patient advocates slam the Senate Republicans' healthcare plan (again)along with American Cancer Society Cancer Action Network, American Diabetes Ass
Business Insider / Posted 6 days ago
along with American Cancer Society Cancer Action Network, American Diabetes Association, American Lung Association, Cystic Fibrosis Foundation, March of Dimes, Muscular Dystrophy Association, National Health Council, National Organization... Read more
7d
Business Wire
New Draft of BCRA Fails to Adequately Protect People with Pre-existing ConditionsCancer Society Cancer Action Network American Diabetes Association American H
Business Wire / Posted 7 days ago
Cancer Society Cancer Action Network American Diabetes Association American Heart Association American Lung Association Cystic Fibrosis Foundation March of Dimes Muscular Dystrophy Association National Health Council National Organization... Read more
7d
Palm Beach Daily News
Piper’s Angels party in Palm Beach kicks off Crossing for a Cure eventwho were making the crossing fron Davie to Bimini on paddleboards to raise fund
Palm Beach Daily News / Posted 7 days ago
who were making the crossing fron Davie to Bimini on paddleboards to raise funds for Piper’s foundation and the Cystic Fibrosis Foundation. The evening included cocktails, hors d’oeuvres, and the presentation to Piper of her own bangle... Read more
7d
WHAS TV11 Louisville
Man belts out national anthem over intercom at Missouri Wal-Martpeople gathering around us to see what was happening and I couldn't help but to
WHAS TV11 Louisville / Posted 7 days ago
people gathering around us to see what was happening and I couldn't help but to laugh." Fruits, a dad of three, said if anyone is touched by his video to donate to the Cystic Fibrosis Foundation in his daughter Mylee Fruits' honor. © 2017 ABC... Read more
7d
Business Wire
Vertex Announces Reimbursement Agreement in Italy for ORKAMBI® (Lumacaftor/Ivacaftor), the First Medicine to Treat the Underlying Cause of Cystic Fibrosis in People Ages 12 and Older with Two Copies of the F508del MutationFor additional information and the latest updates from the company, please visi
Business Wire / Posted 7 days ago
For additional information and the latest updates from the company, please visit www.vrtx.com. Collaborative History with Cystic Fibrosis Foundation Therapeutics, Inc. (CFFT) Vertex initiated its CF research program in 2000 as part of a... Read more
8d
New Kerala
SetSchedule Launches The SetSchedule Foundation to Benefit Tech and Other Charities - newkerala news #253718Society (ATS), the Technion-Israel Institute of Technology, the American Friend
New Kerala / Posted 8 days ago
Society (ATS), the Technion-Israel Institute of Technology, the American Friends of the Israel Philharmonic Orchestra, the Cystic Fibrosis Foundation and Larger than Life. Through the hosting of events to benefit these groups as well as donations,... Read more
10d
Op-Ed News
Kentucky Health Care SpeechAssociation, the Federation of American Hospitals, the Catholic Health Associat
Op-Ed News / Posted 10 days ago
Association, the Federation of American Hospitals, the Catholic Health Association, the American Lung Association, the Cystic Fibrosis Foundation, the March of Dimes, the National MS Society and the American Nurses Association. All of them... Read more
10d
Business Standard India
Royalty Pharma, PE firm that quietly profits on top-selling drugsrecent years, Royalty Pharma’s deals have grown larger. In 2014, it agreed to
Business Standard India / Posted 10 days ago
recent years, Royalty Pharma’s deals have grown larger. In 2014, it agreed to pay $3.3 billion to an affiliate of the Cystic Fibrosis Foundation for rights to the drug Kalydeco and other treatments for cystic fibrosis marketed by Vertex... Read more
12d
WWLP Springfield
Living while dying: ‘Little Buddha’ wisdom from a terminally ill ‘goofball’sick kid?” Claire is one of 70,000 people worldwide, 30,000 in the United Stat
WWLP Springfield / Posted 12 days ago
sick kid?” Claire is one of 70,000 people worldwide, 30,000 in the United States alone, who live with cystic fibrosis, the Cystic Fibrosis Foundation estimates. To have the disease, both parents must be carriers of the CF gene. If they are, there’s... Read more
15d
Sarnia Observer
Sarnia Kinsmen Ribfest returning this weekendneeds. That's the Kinsmen motto,” he said, noting that the all-Canadian service
Sarnia Observer / Posted 15 days ago
needs. That's the Kinsmen motto,” he said, noting that the all-Canadian service club gives to organizations such as the Cystic Fibrosis Foundation, Santa Claus and Canada Day Parades, Noelle's Gift, the Salvation Army and Celebration of Lights... Read more
15d
KESQ Palm Springs
Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United Stat
KESQ Palm Springs / Posted 15 days ago
sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United States alone, who live with cystic fibrosis, the Cystic Fibrosis Foundation estimates. To have the disease, both parents must be carriers of the CF gene. If they are, there's... Read more
6 related articles
15d
ABC 7 El Paso
Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United Stat
ABC 7 El Paso / Posted 15 days ago
sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United States alone, who live with cystic fibrosis, the Cystic Fibrosis Foundation estimates. To have the disease, both parents must be carriers of the CF gene. If they are, there's... Read more
6 related articles
15d
News 8000
Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United Stat
News 8000 / Posted 15 days ago
sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United States alone, who live with cystic fibrosis, the Cystic Fibrosis Foundation estimates. To have the disease, both parents must be carriers of the CF gene. If they are, there's... Read more
6 related articles
15d
KECI Missoula
Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United Stat
KECI Missoula / Posted 15 days ago
sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United States alone, who live with cystic fibrosis, the Cystic Fibrosis Foundation estimates. To have the disease, both parents must be carriers of the CF gene. If they are, there's... Read more
6 related articles
15d
KRBC Abilene & KTAB Abilene
Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United Stat
KRBC Abilene & KTAB Abilene / Posted 15 days ago
sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United States alone, who live with cystic fibrosis, the Cystic Fibrosis Foundation estimates. To have the disease, both parents must be carriers of the CF gene. If they are, there's... Read more
6 related articles
15d
WCYB 5 Tri-Cities
Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United Stat
WCYB 5 Tri-Cities / Posted 15 days ago
sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United States alone, who live with cystic fibrosis, the Cystic Fibrosis Foundation estimates. To have the disease, both parents must be carriers of the CF gene. If they are, there's... Read more
6 related articles
15d
KRDO Colorado Springs
Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United Stat
KRDO Colorado Springs / Posted 15 days ago
sick kid?" Claire is one of 70,000 people worldwide, 30,000 in the United States alone, who live with cystic fibrosis, the Cystic Fibrosis Foundation estimates. To have the disease, both parents must be carriers of the CF gene. If they are, there's... Read more
6 related articles
15d
News-Medical-Net
UC scientists develop new computerized tool to promote shared decision-making with CF patientsgenetic disease that causes persistent lung infections and limits the ability t
News-Medical-Net / Posted 15 days ago
genetic disease that causes persistent lung infections and limits the ability to breathe over time, according to the Cystic Fibrosis Foundation. A defective gene causes a thick buildup of mucus in the lungs, pancreas and other organs. More... Read more
17d
The Palm Beach Post
Local startup combines golf and businessa buffet lunch included self-described serial salesman and author Steve Nudelbe
The Palm Beach Post / Posted 17 days ago
a buffet lunch included self-described serial salesman and author Steve Nudelberg, Colette Beland of the Palm Beach County Cystic Fibrosis Foundation and Keith Davey of the Alkeon Capital Management Fund. Proceedings then moved outside, where... Read more
21d
The Hill
New health bill replaces hope with fear in cystic fibrosis patientseach day. I’ve listened to a child’s chest and known they are losing their figh
The Hill / Posted 21 days ago
each day. I’ve listened to a child’s chest and known they are losing their fight to breathe. As president and CEO of the Cystic Fibrosis Foundation, I’m proud to say we have made amazing progress. In the 1950s, a diagnosis meant a child likely... Read more
22d
KXLY-TV Spokane
Mom of son with rare disease says healthcare decision is about more than 'politics'into believing that it doesn't have cystic fibrosis. As a result, he can live m
KXLY-TV Spokane / Posted 22 days ago
into believing that it doesn't have cystic fibrosis. As a result, he can live more normally. According to info from the Cystic Fibrosis Foundation (CFF), Kalydeco costs over $32,000 per month. “I am fighting for what I know my child needs and... Read more
27d
Times News
Rose Ostrowski returns to Blueberry Festivalat 4 p.m. July 15. She’ll be located at the community stage. Ostrowski recentl
Times News / Posted 27 days ago
at 4 p.m. July 15. She’ll be located at the community stage. Ostrowski recently released “Your Words” to benefit the Cystic Fibrosis Foundation. Her third single is available on iTunes, Amazon and Google Play. The two-day festival will take... Read more
27d
Business Wire
Senate Health Care Bill Fails to Adequately Protect People with Cystic Fibrosiscare reform bill, the Better Care Reconciliation Act (BCRA), and reports indica
Business Wire / Posted 27 days ago
care reform bill, the Better Care Reconciliation Act (BCRA), and reports indicate a Senate vote is likely next week. The Cystic Fibrosis Foundation issued the following statement in response: “The Better Care Reconciliation Act is unacceptable... Read more
29d
San Antonio Express-News
Thomas was publisher at The LightThe Light noted that Thomas even participated in a bachelor auction — with his
San Antonio Express-News / Posted 29 days ago
The Light noted that Thomas even participated in a bachelor auction — with his wife’s consent, of course — to benefit the Cystic Fibrosis Foundation. As a father, he encouraged his daughters and stepchildren to find ways to make themselves... Read more
m
Palm Beach Daily News
Dad’s love: Paddleboarders to raise $100K for Piper’s Angels on Father’s Day weekendraised will help cover Piper’s medical expenses, and support local families wit
Palm Beach Daily News / Posted 1 months ago
raised will help cover Piper’s medical expenses, and support local families with a loved one affected by CF and go to the Cystic Fibrosis Foundation for research. All 36 paddleboarders had to raise at least $1,000 through crowdfunding before the... Read more

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